Recovery

Aug. 10th, 2025 11:53 am
embeing: Rider from Fate Hollow Ataraxia (Default)
 It's been an agonizing long time since I posted last, but this year has been crazier than I ever expected possible. Every time I stop and go 'well now certainly things will stop changing' a new thing comes up and I'm usually leaping at the opportunities as they come. It's made for an exciting time for me, but a lot of it is personal stuff and none of it makes for the kind of life space where I felt like I had a lot of energy for writing a blog.

On top of that, my health has been bad. The ostomy life really did not agree with me, I was regularly skirting dehydration despite all my efforts, I had a salt deficiency that you wouldn't believe, my system never really quite regulated to not keep dumping fluid despite everything I tried. That sort of constant trouble meant I couldn't ever sleep through the night, because I'd be woken up 4 times a night to manage my bag, and it kept me from working out because I regularly couldn't make it through workouts without feeling sick due to the overall water loss I was dealing with. The last few months have been exceedingly unpleasant as my focus and my energy all slowly ebbed out of me. I cratered a few weeks before my surgery, truly just hitting bottom in terms of my ability to deal with any of it with the finish line so close. I was just waiting, checked out and struggling to be a person, hoping the surgery could return normalcy to my life.

At 12 days post surgery, I got most of what I wanted already, and the things I don't have yet will come as I heal. I can take a shower and it not be semi-traumatic. I can be gassy with some discretion (I pray you never have to know how loud stomas can be). I have slept through the nights most nights and when i'm woken up I can just roll over and go back to sleep. Even with open wound sites and changing my dressings and giving myself blood thinner shot every day and being on a restricted diet for a little while longer, it's everything I wished for. Every day I move a little easier. I'll heal. And I can go back to a relatively normal life, even if my cancer screening regimen has to be extreme the rest of my life to get here.

Part of this is also transitioning with an ostomy bag has been annoying. My fitness slips, my fashion choices have to accommodate medical appliances I'd like to minimize or hide, you just end up kind of swallowed by large clothing that doesn't really help me feel affirmed in any sort of femininity. Getting there will be a longer road, but the normal one most trans women face of getting comfortable with a personal style and adjusting as my body shifts through hormones. My shape is still changing month to month, I'm still only 8 months into HRT, so ... the adventure continues. 

Anyway, as my energy improves daily I wait to see what the new normal looks like, but I'm happier than I've been with my physical condition in months, and I can't wait until I'm healed up enough to resume more of the things I wanted to do. I can't wait to go back to the gym. Can't wait to have the energy to prep meals with good foods I can eat again (I haven't had a real honest to god salad in over a year. soon!). This upcoming week I'm getting back into the podcast recording swing of things, going back to therapy and getting out of the house. So normalcy slowly begins creeping back into life. I have more thoughts about this, but I'll save them. I want to write here more frequently, which probably means shorter blogs so I don't feel exhausted by them. 

It's just nice to feel whole again. Not like my old self, who I'm happy to leave behind in the summer of 2024 forever, but a new self that I'm still trying to figure out. So much has happened in the last year. But I finally can hopefully feel equipped to embrace it and not like I'm constantly at risk of being swept away by my health problems. 
embeing: Rider from Fate Hollow Ataraxia (Default)
Sorry for the lack of updates, life keeps getting in the way. I've been working on a bunch of podcast homework, and one of the static pages for my website has ballooned to an absolutely absurd size, so things just kind of got away from me on the blogging front.

The main thing is I'm still waiting to hear back about some medical bill stuff, which has been a very difficult feeling to sit with. I'm not a patient person by nature, famously things being out of my control where I just have to sit tight drives me absolutely crazy, and yet I'm in this position where I have another looming medical bill I'm waiting to hear about appeals on. It sucks, because it changes the tenor of my gofundme efforts quite a lot if I have to a whole other giant bill on top of the already large stack of bills, but I'd like to wait until I know before I start blowing social capital on crowdfunding pushes. It's so exhausting to ask people for money, especially when you know you're kind of spending what goodwill you've built up by working online for a decade, and it's even more fraught when I'm like 'we're close to the goal, but there might be another, even bigger number coming down the road' it just makes you feel awful. I don't know. It's been weighing heavily on my mind as I wait for the apparatus of medical billing and insurance appeals to grind to whatever fate it puts on me.

While I wait, life goes on. Summer is hanging on for dear life but you can feel autumn on the days that aren't too stubborn. My birthday is next Sunday, I turn 39. Most of my doctors appointments post surgery have trickled to a crawl. I see my oncologist every three months but I don't see my surgeon until spring when we begin thinking about putting my guts back together again. I have my day job, which is very demanding. I have my podcast work, which keeps me very busy (less demanding, obviously). I started a new relationship. I'm trying to get over some of my social media hangups in this new world of a rapidly dying twitter and the potential of new platforms. Things just keep happening around the one big rock in the middle of the stream of life, and the dichotomy throws my heart into disarray as I keep sitting with this gnawing powerlessness and yet, everything else that's happening is honestly mostly all good news. It feels insane to be happy as a person just getting by in the world, when I'm also slowly cooking in the powerlessness of tens of thousands of dollars of medical debt. I really wish I could just condense being down to a single feeling and not these wild swings, but I can't and maybe it's fine that I can't. I wouldn't want my setbacks and fears to be my entire life, I'm glad I have things that make me happy and keep me fulfilled and busy to eat up the days I spend waiting for the other stuff to play out.

I know this is all very normal stuff, but I still feel like I'm doing something wrong when I mostly feel okay except for when I don't. I'll go happily about my business until the cold realization of my medical situation taps me on the shoulder and then just immediately feel sucked under by a deep hopelessness. To say nothing of the world. This is all just personal shit. If I think about the world at large there's just nothing to feel good about. I try to not dwell on it as much as I can, I'm working on feeling better and getting healthy and doing good and caring for the people within my sphere of things I can affect. It is humbling to be sick, humbling to have to ask for help, humbling for people to show up for you. And I did and do a lot of crying about it, out of shame and gratitude and fear and relief, but eventually you cry less and have to keep on doing something about it, and I try to live in a way that earns this.

Not because I think that's my obligation, I think people should get health care and not be in debt even if they suck, but because like ... I did almost die, I did have cancer at a remarkably young age and it might very well come back in the future, it is SO EASY to just do stuff and feel an existential angst about a future projected end date and then years go by. And I don't want to do that, I want to be more mindful about what I'm doing, find things that make me feel nourished, I want to grow and thrive as best I can even in bad times, because that's how I thumb my nose at this awful summer I had.

I didn't mean to get quite so live laugh love about things, but it really has been a weird few months, and I'm not really interested in fulling giving into the despair and fear I feel. I can feel them, and sometimes they're overpowering, but when I'm able to I'd rather focus on the other stuff. The fear is for stuff that's mostly out of my control, so what could I even do?

That's it. More hopefully in November, I'd like to get this big page update out soon but it might be so big I'll publish it in drafts and slowly work up to a completed page. Thanks for allowing me to be emotional and indulgent. If you find it insufferably positive, yeah, I get it, but also I hope you'll allow me this indulgence. You see, next Sunday is my birthday, so you have to be nice to the birthday bear.

August 2025

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